During the summer of 2019, actor Cameron Boyce passed away from Sudden Unexpected Death in Epilepsy (SUDEP) at only 20 years old. A rising star in his industry, Cameron also was a humanitarian beloved by many. His death has brought attention to SUDEP, a little-known health risk even despite current statistics showing that one in 26 people will develop epilepsy in his/her lifetime.
Cameron’s loved ones have established a foundation in his name to increase awareness of SUDEP. The Cameron Boyce Foundation partnered with the Epilepsy Foundation of America to create K(NO)W SUDEP NOW. The organization’s goals include raising awareness, especially among younger people, about epilepsy and SUDEP; providing tools and resources about reducing the possibilities of SUDEP; and helping fund research to end SUDEP.
To help promote this new initiative, Sally Schaeffer, the executive director of the Epilepsy Foundation of America’s SUDEP Institute, reached out to Charles Ryan Associates after having worked with our team while in a previous role with another CRA client. We jumped at the chance to work with her again as we value the strong relationships we form with our clients and are excited to support them even when their career paths change.
The CRA Film team traveled to California to meet with Cameron Boyce’s family and friends to film the PSA. It’s an honor to have met them, and to help bring attention to a health risk with the potential to affect so many.
View the K(NO)W SUDEP NOW video below:
Learn more as Sally Schaeffer discusses epilepsy and SUDEP, and premiers the video on Good Morning America.